What is Normal anyway?

"Sometimes I pretend to be Normal but it gets boring so I go back to being me."

Love this! 💙

It may be hell sometimes, terrifying, aggravating, sad, lonely, and confusing, but being me is who I want to be.

Love being YOU! If we were all the same life would be boring. Let's face it, there is no "normal." I would like to redefine "normal" as every human has something cool and unique to contribute to making this world the way it is.

Despite the fear our government, media, some religions and some doctors attempt to instill in us; it's a pretty colorful, exciting world to live in and we are blessed to have the abilities and first-world-problems that we have.

I encourage you to find 10 things that you are grateful for in your life.

Let me help you begin by using the 5 senses:

What do you hear? See? Taste? Smell? Touch?

Can you:

  • Use your brain to do things like breathe?

  • Food available even if its not much?

  • Do you have feet and shoes protecting what carries you through your journey?

  • Can you love and be loved?

  • Do your organs work? - Even if they are struggling, are they keeping you alive?

If you answered yes to any of these, you are already off to a good start and living a beautiful and blessed life.

It's an accumulation of the little things in life that many people don't think of, or often take for granted that make up a happy life.

Think small, for big happiness. ❤

Educate.Inspire.Heal. www.chdlegacy.com

- Stephanie Romer




Adopting with CHD

1st Generation Parents
First generation parents of complex and single ventricle congenital heart disease and defect survivors. They are the soldiers who taught us how to fight. Thank you.
Heart Caths & Warrior Blood
Heart catheterizations are a minor invasive procedure to check out hearts to see from the inside. It is comforting to be able to see a heart cath lab before you have a catherization to ease your mind. Stephanie Romer writes about her experiences.
What to Tell A CHD Child...
Keeping the innocence. How much and what should I tell my baby or child with congenital heart disease or defect. Parents, advocates, and doctors can discuss this together as well. Stephanie Romer shares her thoughts on this.
CHD Brain & ADHD
CHD Brain damage comes out in many forms - Executive Functioning issues that can look like and be diagnosed as ADHD, Learning Disabilities, Behavioral Issues, and more...Stephanie Romer writes about her experiences.
34 yr old HLHS Survivor
HLHS warrior turns 34 years old. Hypoplastic Left Heart Syndrome. Congenital heart disease survivor. Stephanie Romer's 34th Birthday - 2019.
Life with 5 CHD's
Stephanie Romer Living and loving life with five congenital heart defects. Hypoplastic Left Heart Syndrome, Transposition of the great arteries, atrial septal defect, ventricular septal defect, mitral valve stenosis
Learning Disabilities & CHD
CHD and Learning disability...Stephanie Romer writes about her experiences and thoughts.
Illness or Drug Addict
Treated like a drug addict in the Emergency Room for being young with a chronic, invisible illness. Stephanie Romer writes about her experiences.
Stress Tests
With CHD we have to go through constant testing. Stress tests is one of those. Living with Congenital Heart Disease and HLHS - Hypoplastic Left Heart Syndrome - makes it more difficult. Stephanie Romer writes about her experiences.
Oldest HLHS Survivor Making Waves
Stephanie Romer story by Project Heart living with half of a heart, twice the fight. Living with HLHS, TGA, ASD, VSD, MVS. Advice for parents and congenital heart disease and defect survivors, patients, doctors, cardiologist.
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