When a lifetime hospital patient becomes an Advocate...if you are blessed to have this person fighting for you...listen to them.
Aside from exercising my stellar Advocacy skills (which amp up when it's family), knowing exactly how to talk to different types of doctors and make my way around any hospital room-I found 2 positives of being on the other side of the crinkly, wheely bed:
1) Still Free Socks - and I got the only color I don't have..and yes, put them on because my feet were freezing and I was turning purple.
2) Free O2 test - I was bored...took my O2 when they were sleeping:
I am proud of myself and must admit -Every single doctor said their own variation of, "wow this girl knows what she's talking about...um...yeah, what she said-so, listen to your family Advocate here because you are very lucky to have her." Or "wow are you a nurse? A doctor? Work in a hospital?" Or "Well those are excellent questions..." (gulp) ... some doctors get nervous when they meet someone who knows the ins and outs of what I call, "the hospital life."
Being a professional Patient, Patient and Family Advocate, Trauma Specialist, Coach and soon to be Author - I am pretty much an expert in hospitals by now...as all of us who have grown up in hospitals are.
I know every beep and how to turn the machine off or if it's important to actually call a nurse, how to change IV bags, put on EKGs, adjust oxygen, etc. I know the questions to ask, the protocol for medication administration (even though all medical staff doesn't follow it properly), I know the professionalism that is expected vs what is sometimes delivered and I know the sensitivity of the patient - which very few doctors consider. Of course there are millions of things I DON'T know, but the basics of how to get the answers you are looking for, get things done properly, and the appropriate processes for every step are ingrained in me. I have even pulled my own IV's out, bandaged up my wounds, unhooked all of my machines and wires, and discharged myself because I was in a hurry to get back to work. (20's life!)
Through the years as an Advocate and Life Coach, I have been helping and Advocating for people from phones and the internet-even walking some family members or patients step-by-step through scary appointments, hospital stays or other medical situations. (I do stay on the phone with you or immediate availability through texting or zoom the entire time if that is part of your session or package!)
Sometimes I sit back and say WOW I am only 34 years old and have the life of an 80 year old...but the positive side of that is taking advantage of my youth to help everyone who never had a ME before.
I have built myself into everything I and my parents always wanted and needed- a living, breathing, speaking, writing, coaching, guiding resource for the Invisible Illness & Child Abuse Communities.
COACHING WITH ME:
Now, as an almost graduated Empowerment Coach (much more intense than a Life Coach) and Trauma Specialist, I am only taking 6 clients per month until my book is out, however I do have a waiting list available and if it is an emergency session (which I understand many of us need as patients and families in this Chronic Illness Life,) we can discuss that.
Due to my recent family emergency, I had to spill a the rest of my August appointments over to September & October, so there are now only 4 appointments left beginning October.
Please e-mail Stephanie@CHDLegacy.com and my assistant will get back to you to schedule your 30 min Free Consult or your next session.